Dear Friends of Pediatric Palliative Care in California:
From 2001 to 2015, as an independent child-focused organization, the Children's Hospice and Palliative Care Coalition of California (CHPCC) facilitated groundbreaking legislation: California's Nick Snow Act and the Federal Concurrent Hospice Care Provision 2302 of the 2010 Affordable Care Act. We also hosted provider training and symposia, conducted research, formed alliances with key stakeholders including payers from both public and private sectors, and engaged state and national representatives in pediatric palliative and hospice care. Most importantly, CHPCC elevated the voices of families.
From 2015 to 2020, CHPCC continued advocating for the pediatric palliative care community as a program of the Compassionate Care Coalition of California (CCCC). Last year we worked with CCCC to return CHPCC back to its founders so that the pediatric community of stakeholders could once again form a coalition singularly focused on the unique needs of seriously ill and dying children in California.
Starting with a small group of volunteers, we now have the opportunity to unite our efforts toward the vision that every child with a serious illness in California has access to high-quality palliative care when and where they need it.
Through our united efforts, we can:
Communicate a common vision of quality pediatric hospice and palliative care in California
Advocate for public policies to serve the needs of seriously ill children and their families
Realize access to quality hospice and palliative care for all children in all areas of our state
Educate the public and policy makers about the needs of children living with serious illness and their families