Join the Movement to Improve Care for for Seriously Ill Children

Dear Friends of Pediatric Palliative Care in California:

From 2001 to 2015, as an independent child-focused organization, the Children's Hospice and Palliative Care Coalition of California (CHPCC) facilitated groundbreaking legislation: California's Nick Snow Act and the Federal Concurrent Hospice Care Provision 2302 of the 2010 Affordable Care Act. We also hosted provider training and symposia, conducted research, formed alliances with key stakeholders including payers from both public and private sectors, and engaged state and national representatives in pediatric palliative and hospice care. Most importantly, CHPCC elevated the voices of families.

From 2015 to 2020, CHPCC continued advocating for the pediatric palliative care community as a program of the Compassionate Care Coalition of California (CCCC). In 2020 we worked with CCCC to return CHPCC to its founders so that the pediatric community of stakeholders could once again form a coalition singularly focused on the unique needs of seriously ill and dying children in California. Celebrating the transition from the Pediatric Palliative Care Waiver to a state-plan benefit! Starting with a small group of volunteers, we have continued to unite our efforts toward the vision that every child with a serious illness in California has access to high-quality palliative care when and where they need it. 

The Coalition continues to advocate for increased access, serving as subject matter experts and testifying in Sacramento. In partnership with stakeholders and parents, in October of 2023, legislation was signed to extend the state plan benefit for pediatric palliative care to age 26. With the help of the QoLa Team at Packard Children's Hospital, the Northern California Pediatric Palliative Care Collaboration (NCPPC) was renewed in 2024. This year the Southern California Pediatric Palliative Care Network (SCPPN) will also be re-energized! Together we can do much! 

Through our united efforts, we can:

Communicate a common vision of quality pediatric hospice and palliative care in California

Advocate for public policies to serve the needs of seriously ill children and their families

Realize access to quality hospice and palliative care for all children in all areas of our state

Educate the public and policy makers about the needs of children living with serious illness and their families