We want to hear from you!

Welcome to our first newsletter! Over the last 18 months, the Children’s Hospice and Palliative Care Coalition of California has been reignited, and it could not have happened without all of you. As we start to work towards our next steps, we wanted to share some highlights and ask for your input to help us steer our coalition into the future in the best way to meet the greatest needs.

First, we hope you all have checked out the California Pediatric Hospice and Palliative Resource Map on our website – http://www.chpcc.org/resources. We have made improvements based on feedback we’ve received and overall have heard that the resource has been useful.  Please reach out with your feedback; we would love to hear about your experience using the map. Don’t forget to let us know if there are any edits or additions needed by emailing us at info@chpcc.org

Second, as we reported in our last update, our steering committee, and transitional task force decided we would best be served by continuing under the umbrella (fiscal sponsorship) of an established 501(c)3 organization as we are still growing our organization. This fiscal sponsorship allows us to be a separate organization under the non-profit status of the sponsoring group. We want to thank our prior fiscal sponsor, Jacob’s Heart, for their unwavering support for the past few years, and we look forward to the potential of working together in the future. We also want to thank the Pediatric Palliative Care Coalition of Pennsylvania (PPCC-PA) for becoming our new fiscal sponsor as we work on our next steps to becoming an independent organization. While we will operate as a California-based organization, in many ways, this relationship with PPCC-PA reinforces our shared values and the work we are already doing together (see more information on our webinar series at the end of this newsletter 😊). 

Third, we want to continue the excitement we’ve seen in the last several months in re-energizing the CHPCC of California. As part of a strategic planning process, we will be scheduling a series of small group discussion sessions in late September/early October. Please look to your emails for the invitation! We want to hear from as many of you as possible! 

TOOLKIT ACTIVITY

For children who are grieving the loss of their siblings, returning to school can be a difficult transition. Check out this month’s highlighted  activity from the toolkit that may help children  and teens in the upcoming school year.

Make a Feelings Chart

Click HERE to download the activity.  

PPCC invites you to share this information with parents, caregivers, medical professionals, providers, therapists, etc.

 Pediatric  Palliative  Care Series

A collaborative effort between the Children’s Hospice & Palliative Care Coalition of California, the Pediatric Palliative Care Coalition of Pennsylvania, & the Greater Illinois Pediatric Palliative Care Coalition this webinar series is focused on providing up-to-date information in the field in a way  to enable participants to use or replicate the lessons learned. Continuing education units are available & recorded webinars are available for purchase.  Visithttps://www.ppcwebinars.org for more information.   

Upcoming Webinars 2022: 

September 22, Interprofessional Spiritual Care in PPC, Christina Puchalski, MD, MS, OCDS, FACP, FAAHPM

October 18, A Collaborative Approach to Addressing Trauma & Building Resilience in Palliative Care Providers, Colleen Cicchetti, Ph.D.

November 17, Palliative Care: A cloak of Comfort in Sickle Cell Disease, Anne Marsh, MD

HAVE ITEMS OF INTEREST TO SHARE?

E-mail us at info@chpcc.org

Please feel free to forward this newsletter!

Are you part of a pediatric palliative, hospice, or supportive care team/organization? Please check our resource map and let us know if your information is up-to-date or if changes are needed. Please contact us via our website https://chpcc.org  or e-mail us at info@chpcc.org

THANK YOU

CHPCC Steering Committee

Kim Bower, MD, FAHPM, HMD-C; 

Kim@chpcc.org

Debra Lotstein, MD, MPH, FAAP, FAHPM; Debra@chpcc.org

Christy Torkildson, Ph.D., RN, PHN, FPCN; Christy@chpcc.org

CHPCC Advisors

Lori Butterworth, M.Ed., MS

Sherri Sager, MPA

Transitional Task Force

JoAnne Auger, RN, CHPPN                       Christina Badasow, RN, BSN

Colleen Cherry MSCL, CCLS, CT, GCCA-D                  Kathy Cleberg, RN, Parent

Joan Fisher, MD, Ph.D.                                Mary Ford, RN, CNL, NP, CHPN

Julie Lussier, RN, BSN                                Tristian Mitchell, LCSW

Julia Moore, RN                                            Salina Patel, RN, BSN

David Sine, MD                                             Lisa Schoyer, MFA, Parent

This and future issues of our newsletter will be available on our website and emailed to our mailing list. To join our mailing list or change your preferences, please contact us via our website at https://chpcc.org or email us at info@chpcc.org

All information in this newsletter is for your information only. The news reported in the CHPCC Newsletter does not necessarily reflect the official opinion of CHPCC. Some links in CHPCC Newsletter are time-sensitive and may move or expire over time. Some sources also may require registration or fee-based subscriptions.Keeping in Touch