Additional Resources
Neuro Journey
This tool will help orient and support you as you navigate the ever-evolving needs of your child and the complex decisions that lie ahead. Here you will find both practical and medical information, and insights from parents and clinicians about the social and emotional experiences common to having a child with Severe Neurological Impairment (SNI).
Courageous Parent's Network
Courageous Parents Network is a non-profit organization that orients and empowers parents and others caring for children with serious medical conditions, by providing resources and tools that reflect the experience and perspective of other families and clinicians. Here—in videos, podcasts, printable guides, Guided Pathways, and blog—you will find wisdom from families and pediatric clinicians to help you feel you are doing the very best you can for your child and family. Website: https://courageo
National Hospice and Palliative Care Organization (NHPCO)
NHPCO provides many resources for pediatric providers and families. Most are open access and not behind a member wall. Check out the family resources, professional resources, toolkits such as for concurrent care, the Pediatric e-Journal, and Pediatric Facts & Figures, 2023 edition. https://www.nhpco.org/pediatrics/
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Email us at info@chpcc.org!
Our Partners
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