Advocacy Resources
Hospice Action Network Policmaking 101
An open-access resource by the Hospice Action Network (HAN), an advocacy partner of the National Hospice and Palliative Care Organization. HAN’s mission is to advocate with one voice for policies that ensure the best care for hospice and palliative care patients and their families. Although not pediatric specific this resource can be quite helpful. https://hospiceactionnetwork.org/wp-content/uploads/HAN-Policy-Making-101_Final.pdf
Kaiser Family Foundation Health Policy 101
Dr. Drew Altman, president and chief executive officer of the Kaiser Family Foundation (KFF). edited this online resource/mini textbook. This is aimed to help those who want to learn more about health policy in the US. This is based on KFFs definition, their views and what they do, what health policy centers around, what the government does, and public programs such as Medicaid (MediCal in CA), Medicare, the ACA, financing and coverage. Check it out at : https://www.kff.org/health-policy-101/
List of State Pediatric Palliative Care Coalitions
Research and Advocacy Resources
Pediatric End-of-Life Care Research and Advocacy Resources
Dr. Lisa Lindley and her team has spent over a decade researching end-of-life care for pediatrics. Severl of her projects were focused on California. Their website has a wealth of information and tools to assist in advocacy efforts. You can learn more at: https://pedeolcare.utk.edu
